A Bowl of Oatmeal Anyone? By Mrs. Dorothy Barron
Parents Taking Charge in Education Blog: School Principal- Is Your School worth Saving by Mrs. Dorothy Barron at: http://mrsdbarron.blogspot.com/2011/09/school-principal-is-your-school-worth.html
For the last five days (Friday, a week ago until Tuesday of this week) each meal for me consisted of a bowl of oatmeal (with raisins/couple of days, chopped nuts). Although nourishing in many ways to the body both inside and out, oatmeal does not alone provide all necessary nutrients for the body.
Let me preface what I am about to say by saying, changes are occurring within government under President Obama's administration, but due to both the scope, depth and length of years the problems have been allowed to exist, they will not be rectified immediately.
I will list five reasons as the result of and why oatmeal has been the only meal for five days as well as an empty refrigerator?
- Dumping of the total burden on relatives who cannot sustain the total burden
- Lack of the state complying with federal mandates
- Lack of agencies and individuals that have been funded to assist people who are eligible and approved for those services
- Disability Agencies and Organizations whose mission is to assist those with Disabilities
- Inability, unwillingness and/or lack of those agencies and organizations that have been funded to assist people with disabilities
- Lack of regulatory oversight
Health and education (learning) are two of the most important factors needed to sustain a society; lack of either or both and a society perish. However, I want to concentrate on those with disabilities in this post and bring attention to situations that need changing. I choose not to view myself as a person with disabilities, simply a person with some limitations, because I strongly believe the manner in which one views self ultimately becomes the essence of self. In other words, as a man "… thinketh in his heart, so is he…" (Bible, KJV, Pro. 23:7).
Very often the adverse situations or plight in which persons with disabilities find themselves are not of their own making. In my particular situation, A bus operator's act of retaliation aboard MARTA caused my disabilities; Yet, at the point of settlement and according to the law firm which represented me, the lawyer who handled my case disappeared and I, the injured party received nothing. Of course if you read Parts I - VII of my series, *Education: Live Case Study- 9Year Government "Back to Work" Case with No End or Resolution in Sight, you have seen the travesty involved with my trying to return to work under at least two government back to work programs. My Slinging Stones… Blog can be found at this link: http://www.dorothybarron.com and the series, here: http://www.dorothybarron.com/slingingstones/2011/06/education-live-case-study-9year-overnment-back-to-work-case-with-no-end-orresolution-in-sight-by-mrs-dorothy-barr.html Where does such leave one? Following are where one may find him/herself:
Dumping of the total burden on a relative(s) who cannot sustain the total burden
Very often funding forthcoming from the federal government to the state to assist people with disabilities is not forthcoming. Often, the state dumps the total burden off on relatives instead. Relatives can and may assist, but many cannot take on the total burden of one's care and would not have to if mandates which the government has in place were adhered to. My relative(s) did not cause my disabilities, nor prevented my going back to work as I have fought and struggled with the system for over 10 years to do so. Let me also note, had I been able to complete my back to work training program, I would now be self-supporting and able to hire individuals to assist me with my disability needs. Instead, this one relative must bear the burden of trying to take care of two households, work at more than one job and pay back school loans. The relative could not shop for me this week, cook or wash; car problems prevented such. Oatmeal was my sole meal for the last five days.
Lack of the State complying with Federal mandates and the law
I live alone, am non-ambulatory and due to the nature of the disability which was a top priority upon evaluations performed by the state, approved services were forthcoming for years when and after the state was forced to comply with mandates of the law. But, how many impoverished and/or poor people know enough of the law to hold those accountable to the law? Hence, the state collects federal monies and often dumps the total burden of the person with disabilities on the care of relatives or others. The state has taken federal funding to transport Medicare beneficiaries to medical appointments, but will only transport one within a 20-30 mile radius. Such is fine if one's physician(s)' is/are within that radius; if not you are on your own. I have not been able to get crucial medical care or annual tests prescribed for women for over three years, or physical therapy for over four years.
Lack of agencies entities and individuals that receive government funding to assist people who are eligible and approved for services
Instead of the many agencies which have been funded by the federal government to assist those with getting required and/or necessary services, some would rather lie and/or falsify the individual's records to prevent their doing so. The State of Tennessee has an agency, Adult Protective Services whose purpose is to investigate cases, access and provide protection and services to adults with certain disabilities/limitations who suffer from abuse, neglect and/or financial exploitation (Adult Protective Services). My experiences with this agency in times past (due to lack of assistance- neglect), resulted in the agency director's failure to assist, because and according to her, "I have a history with the agency." Of course they will not put this foolish statement in writing and supply to me in order for me to present it to the federal government. It will take too much time to relay their shenanigans and deceptions, here and now.
As for physicians throughout this city and in some surrounding areas, once reported of violations and unlawful medical treatment, one is blackballed. I was in my former Nashville primary care doctor's office when my back failed to support me and I had to immediately get into a supine position. After nurses informed the physician, I was informed that there were no empty evaluating rooms. I was forced to lay on the floor in this physician's waiting room as his patients stared in unbelief. Some even walk out without treatment shocked and disgusted by the doctor and his staff's treatment.
At one emergency room's hospital, the results of one of my tests was so alarming, the technician immediately sought assistance and informed me such was the case. I waited and waited and waited; no one return. An orderly finally appeared and placed me back in the emergency room cubicle. The direct words the emergency room treating physician's spoke to me regarding my test results were, "you're clear as a bell."
I have published in an earlier blog post treatment of my emergency room visit by some at Summit Medical Center located in Hermitage, TN. The emergency room doctor who treated me deliberately wrote a prescription for a drug that could have killed me had I taken it. The 2 Part blog post titled, Jumping through the Hoops Pt.2A- Crumbling Foundation: The State of Healthcare - Medicare and Medicaid Entering 2011 by Mrs. Dorothy Barron begins here: http://www.dorothybarron.com/slingingstones/2011/01/jumping-through-the-hoops-pt2a-crumbling-foundation-the-state-of-healthcare-medicare-and-medicaid-en.html . Need I continue?
So now with lumps in the body which should not exist, I turned to Disability Agencies for assistance to find assistance with getting to my primary care doctor's office.
Disability Agencies and Organizations whose mission is to assist those with Disabilities
Referral and Advocacy is virtually all most do. Most care very little of the disability community; instead their jobs, the retaining of their funding and insuring that the disable not receive needed assistance in order to keep government funding rolling in are their top priorities. They refer one from one agency to the next without meaningful results and with all their advocating, what many of us within the disability community know for a fact is that little changes for us. Most often those within the disability community will receive more assistance from little known and even less funded disability agencies/organizations that assist the disabled.
In need of finding assistance to travel to my primary physician, I recently contacted the Tennessee Disability Coalition (TDC) for help with obtaining assistance. I was referred to another agency. The referrals provided by the referred agency were of no assistance. Upon my having informed the Director of TDC of the results, I was given a spiel that TDC's mission was public policy research and advocacy along with "…45 member agencies to identify and work on policy solutions to issues facing people with disabilities" (C. Westlake, Director). My plight became even more serious without any assistance in the home or meals. I then requested the director supply me with a listing and contact information for the 45 member agencies. She replied that she would be out of the office for the week and I could go to their website and archives to locate the requested information.
I am in pain; I was hungry and physically weak; yet, asked to go through a website at the Tennessee Disability Coalition and search for information that this director was too callous to provide or get someone within her office to do so. Some of these same individuals profess to care about their mission and the disability community; their actions profess otherwise.
Lack of regulatory oversight
For too long, the ultimate and desired goal here in America has been "failure." Failure is profitable and a sure way of getting continued government funding. Some months ago, Vice-President Biden announced a new initiative for Cutting Waste in government. It is time to cut some waste in the area of Disability Agencies and ineffective program services some offer the Disability Community. Policy research entities and organizations abound; we know what the problems are as well as the desired solutions. The solutions require funds and funding. Many agencies provide the same services and for what most accomplish, their services/referrals can be placed on an automated system.
From me, to you
Mrs. Dorothy Barron, Author
"Slinging Stones… Blog" by Mrs. Dorothy Barron:
http://dorothybarron.com/slingingstones or
http://mrsdbarron.typepad.com/slingingstones
Parents Taking Charge in Education Blog: http://mrsdbarron.blogspot.com
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